The Yale IBM Survey

IBM is considered an “orphan disease” and thus there is not the same level of research being made or information available as with many other more prominent diseases. Because of this, we hope to provide some additional insight for patients, doctors, and researchers about IBM and how it affects those who suffer from it.


About the Survey

Beginning in 2012, a group of researchers at Yale undertook development of a self-reporting questionnaire of IBM patients in North America in order to collect both clinical and demographic...


Get Involved…Help Beat IBM!

Join the Registry (see below), and if you wish, you can obtain your personal measure on the IBM Personalized Index Calculator developed by our research team with the data from our national...