Welcome to the IBM Registry

A collaborative work between Yale Public Health, medical professionals and proactive people with IBM

About Us

You can read more about us by continuing below or you can go directly to some Frequently Asked Questions now and come back to here later.


About the Survey

Beginning in 2012, a group of researchers at Yale undertook development of a self-reporting questionnaire of IBM patients in North America in order to collect both clinical and demographic...


Get Involved…Help Beat IBM!

Join the Registry (see below), and if you wish, you can obtain your personal measure on the developed by our research team with the data from our national survey. By answering a few short...


We write with great sadness to say that Professor Martin Shubik, founder of the Inclusion Body Myositis Registry, passed away at the age of 92 on August 22, 2018 at his home in Branford, Connecticut.

We would like to share the following pieces remembering Professor Shubik.

Yale School of Management: Remembering Prof. Martin Shubik, 1926-2018

New York Times: Martin Shubik, Economist and Game Theory Pioneer, Dies at 92

Yale Daily News: Martin Shubik, eminent economist, dies at 92

New Haven Register: Yale Professor recalled as brilliant economist, loving family man